Category: In Which We Mock Our Illness

Sigh. A recap. I have mentioned this before. (Those are only the two most recent posts; I’d say there’s a yearly post on this topic.) I take very a expensive MS medication. This is redundant. No such thing as a cheap MS medication. I am fortunate that the manufacturer acknowledges it is outrageously expensive, and…

From NPR, February 5th: An immune suppressed man in Boston caught Covid and didn’t get over it. He couldn’t, because the virus kept mutating inside his body. They sequenced the genomes while the poor man took five months to die, and they found twenty different mutations. Now that the global mutations are in the news,…

Well, maybe not “bumped” again, given that I’m really just clarifying the definitions of the vaccination tiers. It seems that in Missouri: If you take an immune-suppressant so you don’t reject your organ transplant, then you move up in the list. If you take an immune-suppressant because you have an auto-immune disease, then you don’t.…

I was watching CNN, last week, with the sound off, because it’s what I do, all the time, and Dr. Fauci was answering viewer questions about the vaccine. I wondered, “Can I even take it? I can only take dead virus vaccines. Is RNA live or dead?” And just at that moment the closed captioning…

Key information is lurking in the websites and fine print for some over-the-counter medicines. Beware. Not only is Geritol 25% alcohol, MiraLAX has key data on the website that is not on the bottle. My neurologist heard I was still on a weekly elimination schedule and suggested the MiraLAX. I followed the directions and the…

If viruses were people they would be sociopaths. Polio Viruses are Vengeful – Mom got polio at 13, and died from post-polio syndrome at 71. Will Covid do the same … will the after-effects kill the survivors sixty years on? Poliomyelitis will wait to get its revenge, Covid may as well. Cold Viruses Wear Disguises…

So, you have to titrate your way onto this new drug. “Huh,” I thought, “I didn’t have to do that with my old drug. Then again, I had to spend a day at the hospital under observation.” So I shrugged, and popped the first pill, which is one tenth what my final dose will be.…

Well, this is exciting. I don’t have to wait months for the shingles booster shot before I start the new drug. I’m going to start the new drug in the next few weeks. Here’s what’s going to happen: I will get the Drug Delivery date. One week before that date I stop taking the Gilenya.…

Well, I am now definitely saying goodbye to my Gilenya and hello to Mayzent, which is supposedly the safer version of the same drug. It lets ones immune system bounce back if needed, and in these Dark Times one needs a good immune system. I looked at the patient-targeted literature for this new drug, and…

Well, that was pretty handy. A nurse (or possibly a technician) did come to my porch, as the neurologist promised. She was dressed in scrubs, but she wore her face mask as a necklace. I, on the other hand, wore my face mask as prescribed. I was very impressed with the “sticker” style thermometer. The…