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After forty years, a short-lived mature conversation
Gary is miserable with this skin condition. He can’t regulate his temperature, it itches, it burns, it bleeds, he hurts on the outside and aches on the inside. And because he expresses himself, he wakes up and makes noise. A symphony of moaning and muttering. And then often groaning. Usually I wake up and call…
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TWIL: Coconut sugar is not what you expect
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TWIL: Some bio lab experiments require recently dead specimens
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Gary has lopped off his hair and now I’m a hair stylist
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A miracle has happened
Gary realized he only has skin sores where he has hair. While his fundamental problem is still histamine, he decided his skin problem is actually a histamine problem plus a hair problem. And then, this. HE LOPPED OFF HIS HAIR. I truly gasped. I’m waiting for him to complain about fatigue again so I can…
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Telescope
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Gary’s skin: progress?
I love this MyChart application that lets you keep track of medical appointments, vaccines, lab results, especially now there’s a new feature where you get to see the communications behind the scenes. For example, the neurologist saw Gary’s skin and ordered some blood cell tests. That test came back normal as I was waiting in…
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Never fantasized about this
Here is what I did this weekend: I helped my seventy-year-old husband apply for social security. It made me wonder, before computers, how did they discourage the elderly from applying for social security? Did they put the social security offices on the 10th floor and disable the elevators? Because the computer application is hard, and…
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Gary’s hair
Gary is still coming off the steroids, and he’s having trouble regulating his temperature. Yesterday he said, “I think it’s time to shave off all my hair.” He’s been growing his hair all through the pandemic. It’s below his nipples now. Yes! I thought. Oh God yes please. He added, “I can use my beard…
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