This week I encountered two new ways of looking at MS. I’m going to run these by the neurologist at the end of the month. (First, I need to see if he covered either in his podcast.)
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First new way of looking at MS: MOGAD
So, per this link, MOGAD is “an autoimmune disorder that shares some symptoms with multiple sclerosis and may be misdiagnosed as MS.“
The prognosis seems better, but there seem to be fewer meds. I think MOGAD might be better? Not sure.
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Second new way of looking at MS: ‘Smoldering” MS
This blames some forms of MS on a protein called BTK, not the immune system’s B and T cells we know and fear.
However, consider the source. I found this information at this link, part of which purports to be for Healthcare Professionals.
This is what I found under the “Healthcare Professionals” tab:
Doctors don’t use graphics, colors, and fonts. They use footnotes. This is suspicious.
I scrolled, and the page is provided by a drug company. I wonder if it’s one of the companies disappointed by the news that the inhibitors mentioned in the article above don’t seem to be inhibiting the BTK proteins well in early trials.
Plus, BTK is one unfortunate acronym.
2 responses to “TWIL: New MS news”
… your neurologist has a podcast?
Doctors who are trying to communicate with patients *sometimes* use graphics. Usually even worse than that, but consider the posters in gynecological offices…
(but yeah, no footnotes/citations: move along to something that *does* have backup for what it says. Although reading at least the abstracts of the articles cited is also relevant, since sometimes sources… stretch… what an article is saying.)
Here is his most recent podcast: https://podcasts.apple.com/us/podcast/ms-living-well/id1478469181?i=1000654778189